Mixed feelings.

Today was a busy day. Generally I try not to see multiple doctors in one day if I can help it. The chronic sinusitis had other plans though. So after struggling to breathe for the last few days I decided to see another GP for a second opinion on the sinusitis. My sinuses were seriously inflamed so this is the stash I’ll be taking over the course of the next month or so.

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The GP said that sinus related issues are super hard to treat and since mines is due to a deviated septum there may be a surgery in my future.

The weirdest thing I got today was this:

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I just used it. Its quite an odd feeling but it’s not uncomfortable. After taking all my meds and doing the nasal irrigation I can finally breathe again.

Happiness :3

Things seem to be going okay on the Gastroenterology front. My current diagnosis is Irritable Bowel Syndrome. The current treatment is Alevian duo 2x per day, 15 minutes before meals. It seems to be getting better the longer I use it. Luckily, I won’t need to rush to do the colonoscopy thankfully. I just need to do it at some point this year.

I’ll need to see an ENT at the end of this course of meds for the sinusitis because its probably going to continue coming back until my septum is fixed. The incessant burning in my scalp could also be because the inflamed sinuses are compressing the nerve the runs through my ear. At some point I’ll need to see a dermatologist about the tearing and soreness going on with my fingertips.

I have mixed feelings about the news I got today. Its mostly kinda depressing. Doesn’t make any sense getting angry at my parents yet again.

At least I’m making progress with my health even if it seems like I’m not. I need a break from seeing that hospital. I’m glad that the next appointment is at the end of the month.

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The waiting game.

When I had the endoscopy 2 weeks ago I was told that I had no serious issues with my esophagus, stomach and duodenum. There were signs of inflammation that the GI believed was due to my medication intake. Waiting for the biopsy results seems to be giving me a stress induced ulcer.

It odd for me to be this affected by stress but I suppose that not being able to exercise and being off the generic Prozac has a lot to do with that.

My health seems to be getting more and more complicated. My stomach hasn’t reduced in size since the treatment for E. Coli. In fact it seems to be holding steady at around 6 inches of what appears to be permanent bloat.

Some of the diseases being thrown around to explain my complicated health situation include connective tissue disease and a blood related disorder. There’s still the fact that I need to see a therapist to deal with my depression and dissociative episodes since antidepressants and anti psychotics have failed miserably.

Right now I’m feeling more than a little useless and so very lost. I think I’ll buy a kindle so I can escape. I’m probably very close to my limit for dealing with these things gracefully.

I wish I knew which problem to focus on first.

Endoscopy aftermath.

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I won’t lie. I found the instructions difficult to follow. Prep for an endoscopy is¬†unpleasant. The instructions I received were;

  • No solid food later than 7 am
  • No liquids beyond 10 am
  • Just bear with it til the procedure is over. (It being the hunger pangs and dehydration)

The lack of water got me the hardest, since today was a diarrhea day so I was severely dehydrated by the time I made it to the hospital.

Since I was severely congested and had sensitivity to several medications on top of my normally low blood pressure, my GI went with local anesthesia. I’d like to think it worked well. I imagine it would have been absolute agony without that.

On account of my totally clogged nostrils I ended up puking a lot during this process whenever my throat dried out from breathing in though it. I’m so glad I followed those instructions as that would have been disgusting for everyone involved otherwise.

Then procedure itself was intensely uncomfortable. The numbing agent didn’t take away all of the pain and I couldn’t control my urge to swallow as well as I thought I would.

Afterwards they gave me some yummy soup and kept me in the hospital for an hour or so to make sure I was alright. The gas was probably the worst part. My tummy was already painfully distended so that extra inch or so the gas added was way above my ability to tolerate.

No news yet on whether I need a colonoscopy or not but I know that they’ll be more stool tests in my future.

Thoughts after my second week seeing the GI

I’ve realised after going to see the GI that I’ve become really shameless form a societal point of view.
I disrobe for people I don’t know in the hopes that they can fix what ails me. They can see the bits of me that no one else can through MRIs and other tests.

That being said seeing a new doctor for any reason is a tedious process.

The results of the tests for the first week was anemia and an elevated WBC. I was given Zental to rule out worms and 10 days of an antibiotic.

The second week saw the results of my stool test being positive for large amounts of E. Coli. I was told to finish my course of antibiotics because the one I was taking was effective against E. Coli.
At the second appointment I was also scheduled for a endoscopy tomorrow but it will be rescheduled since the doctor had an emergency to deal with. I didn’t realise how nervous I was until I heard it was rescheduled.

My course of antibiotics ended yesterday morning. Nothing has changed. If things go according to the usual routine I’ll be in agony for the next 2 days. I’m already feeling the fist pangs of pain.

There’ll probably be another stool test in my future as we try to figure out if another parasite is involved.

My body is rebelling from the lack of activity. My legs have started popping out of the joints. So I would love to get some level of relief from these tummy issues so I can get back to my routine soon.

I can only hope that my stomach is okay and that my endoscopy goes off without a hitch.

For now though, its more sleepless nights with stand up comedy. These comedians are literally holding me together right now. When I’m laughing I can forget the pain which is great because there isn’t a part of my body that doesn’t hurt right now.

Gastroenterology woes

Last week Tuesday night my hubby rushed me to the hospital because my torso had been swelling for the last two weeks or so. I’m accustomed to some measure of bloating but this was ridiculous. I began having trouble breathing so off to the hospital we went.

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Thursday, night before I went to the hospital. As you can see my torso is horribly distended.

The doctor on call thought it might be an inflamed bowel or intestine and had a GI agree to see me on Thursday of last week on a rush appointment. I got the required blood tests on Wednesday and Thursday dawned with me fretting over where in the hell my health was going.
Wednesday morning I had a dissociative episode and burnt my hand badly.

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Don't worry, the white stuff is burn ointment.

I haven’t had one in a while so until I see a therapist I’m assuming that the extra stress set me off.
I didn’t learn much on my appointment with the GI last Thursday. I have to so a colonoscopy and an endoscopy at some point but for now it was Zental and the antibiotic Cifran because my WBC was too high. He also needed a stool sample.
Things have been progressively worse since last Tuesday. My torso seems to have reached the limits of its ability to distend which just means that I spent a lot of time sucking it in so the tissues won’t feel like they’re tearing apart.
As the days pass the pain gets worse and worse. I’m afraid of eating as it makes the tummy pains much, much worse.
My seborrheic dermatitis is back so my scalp is burning. It feels like pouring hydrogen peroxide in a wound.
Headaches are a given in this situation. And I have a bunch of ignorant people to deal with on top of it.
This has just been one of those weeks. I wish I could sleep until my next GI visit.